Resources

Community and Consumer Involvement Resources

Information

INVOLVE is a national advisory body that is part of the UK National Institute for Health Research and is supporting public involvement in NHS, public health and social care research and development. It has many tools such as briefing notes for researchers and introductions for how to get people involved

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Australian Government Cancer Council has created a web-based practical tool kit to assist stakeholders, researchers and consumers based on the principles of the National Framework for Consumer Involvement in Cancer Control

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WA Consumer and Community Health Research Network is guided by the NHMRC and CHF of Australia in bringing together consumers, community members and researchers to make decisions about health research priorities, policy and practice

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Statement on Consumer and Community Involvement in Health and Medical Research (2016)

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Practical Guides for Researchers

Primary Health Care Research and Information Service (SA) – Getting Started Guide: Introduction to…Consumer involvement in research

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Consumer and Community Health Research Network (WA) – THE PURPLE BOOK: This book aims to provide guidance to researchers who are planning to actively involve consumers and community members in research.

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Consumer and Community Health Research Network (WA) – FACT SHEETS: The Fact Sheet Series is a booklet of short simple ‘tools’ to support the implementation of consumer and community involvement in health research. They are designed so that you can pick and choose which fact sheets are most relevant to you or your project.

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Cancer Australia – Consumer Involvement Toolkit: Tools for Researchers

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Plain English Tools

Consumer Registries

Cancer Action Victoria
http://www.canceractionvic.org.au/

Consumers Health Forum of Australia
https://chf.org.au/ 

Health Issues Centre – Consumer Step Up Program
http://www.healthissuescentre.org.au/

References

1. National Health and Medical Research Council. Statement on Consumer and Community Involvment in Health and Medical Research. Australian Government National Health and Medical Research Council. [Online] Sept 2016.
www.nhmrc.gov.au/guidelines-publications/s01
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2. McKenzie, Anne and Hanley, Bec. Planning for Consumer and Community Participation in Health and Medical Research: A practical guide for health and medical researchers. Involving People in Research – Consumer and Community Health Research Network. [Online] 2014.
http://www.involvingpeopleinresearch.org.au/images/docs/PURPLE_PLANNING_BOOK_271015.pdf
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3. Review Team, Breaking Boundaries’ Strategic Review of Public Involvement in the National Institute for Health Research (NIHR). Going the Extra Mile a strategic review of public involvement in the National Institute for Health Research. MHS National Institute for Health Research. [Online] Mar 2015.
https://www.nihr.ac.uk/news/going-the-extra-mile-a-strategic-review-of-public-involvement-in-the-national-institute-for-health-research/2739.

4. Australian Government Department of Health. Medical Research Future Fund : Australian Medical Research and Innovation Priorities 2016-2018. Australian Government Department of Health. [Online] 2016.
https://www.health.gov.au/internet/main/publishing.nsf/Content/mrff/$FILE/Australian%20Medical%20Research%20and%20Innovation%20Priorities%202016.pdf
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