Initiatives

Prader-Willi
Syndrome state-wide
plan for children

Overview

Monash Partners is delighted to support the Prader-Willi Syndrome Association of Victoria in their mission to empower those living with Prader-Willi Syndrome through support, education, advocacy and awareness.

A collaboration has been established between the Department of Paediatrics at Monash University, Monash Children’s Hospital, Royal Children’s Hospital, and the Prader-Willi Syndrome Association of Victoria to develop a Prader-Willi Syndrome state-wide plan for children to deliver best care to every child, and their families, in Victoria, regardless of where they live.

The project will be led by Professor Katrina Williams at the Department of Paediatrics at Monash University in close consultation with Associate Professor Tom Connell from the Royal Children’s Hospital.

Monash Partners will support the state-wide plan by working with all stakeholders, including children, families, carers and front-line clinicians, to identify and prioritise elements of best care. The elements that will be prioritised include specific interventions and supports, models of care, location of care and key principles of care.

In May 2022, the Association’s 15 for 15 challenge will raise awareness and vital funds to support development of the state-wide, evidence-based model of care.

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