Initiatives

Prader-Willi
Syndrome state-wide
plan for children

Overview

Monash Partners is delighted to support the Prader-Willi Syndrome Association of Victoria in their mission to empower those living with Prader-Willi Syndrome through support, education, advocacy and awareness.

A Collaboration has been established between:

  • Department of Paediatrics at Monash University
  • Monash Children’s Hospital
  • The Royal Children’s Hospital
  • The Prader-Willi Syndrome Association of Victoria

To develop a Prader-Willi Syndrome state-wide plan for children to deliver best care to every child, and their families, In Victoria, regardless of where they live.

The project is led by Professor Katrina Williams (Department of Paediatrics at Monash University) in close consultation with Associate Professor Tom Connell (the Royal Children’s Hospital).

Monash Partners supports the state-wide plan by working with all stakeholders to identify and prioritise elements of best care.

Our Stakeholders include:

  • Children
  • Families
  • Carers
  • Front-line Clinicians

The Elements prioritised include:

  • Specific Interventions & Supports
  • Models of Care
  • Location of Care
  • Key principles of Care

The Association’s 15 for 15 challenge raises awareness and vital funds to support development of the state-wide, evidence-based model of care.

To learn more about the methods, aims, results and next steps click HERE

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