Initiatives
Prader-Willi
Syndrome state-wide
plan for children
Overview
Monash Partners is delighted to support the Prader-Willi Syndrome Association of Victoria in their mission to empower those living with Prader-Willi Syndrome through support, education, advocacy and awareness.
A Collaboration has been established between:
- Department of Paediatrics at Monash University
- Monash Children’s Hospital
- The Royal Children’s Hospital
- The Prader-Willi Syndrome Association of Victoria
To develop a Prader-Willi Syndrome state-wide plan for children to deliver best care to every child, and their families, In Victoria, regardless of where they live.
The project is led by Professor Katrina Williams (Department of Paediatrics at Monash University) in close consultation with Associate Professor Tom Connell (the Royal Children’s Hospital).
Monash Partners supports the state-wide plan by working with all stakeholders to identify and prioritise elements of best care.
Our Stakeholders include:
- Children
- Families
- Carers
- Front-line Clinicians
The Elements prioritised include:
- Specific Interventions & Supports
- Models of Care
- Location of Care
- Key principles of Care
The Association’s 15 for 15 challenge raises awareness and vital funds to support development of the state-wide, evidence-based model of care.
To learn more about the methods, aims, results and next steps click HERE
News and Resources
From the Director: Victorian Aboriginal Health, Medical and Wellbeing Research Accord The Victorian Aboriginal Community Controlled Health Organisation (VACCHO), the peak body for Aboriginal and Torres Strait Islander health and wellbeing… more
Implementing marra ngarrgoo, marra goorri: The Victorian Aboriginal Health, Medical and Wellbeing Research Accord The Accord has been launched to give voice to Aboriginal and Torres Strait Islander community within research and help… more
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From the Director: Building national infrastructure to support the sharing and reuse of health research data Monash Partners' data platform sits across our partnership supporting systems, strategies and processes to optimise the use of health data for healthcare… more