Resources and Forms

Clinical Research Facilitation Toolkit

Apart from general resources to assist in your day to day work here you will find the useful resources to complete your Monash Partners multi-centre project.

LEGAL DOCUMENT REPOSITORY
This document
is a guide. Kindly note that a standard research agreements template completed correctly and not modified will not mandate a legal review and an expeditious execution in five business days can be guaranteed.

GENERAL
This form
is accepted at The Alfred, Cabrini, Eastern, Epworth, Monash and Peninsula Health and the information provided will be used by the Service Department to determine the cost of the services requested. The information in page 2 of the Service Request Form will not be considered as part of the research governance/site authorisation review and is therefore not mandatory, however it may prove useful in your negotiations with the service department.

CARDIOLOGY
This form
is accepted at The Alfred, Cabrini, Eastern, Monash and Peninsula Health and the information provided will be used by the Service Department to determine the cost of the services requested. The information in the Service Request Form will not be considered as part of the research governance/site authorisation review. 

LUNG FUNCTION
This form
is accepted at The Alfred, Cabrini, Eastern, Monash and Peninsula Health and the information provided will be used by the Service Department to determine the cost of the services requested. The information in the Service Request Form will not be considered as part of the research governance/site authorisation review.

PATHOLOGY
This form is accepted at The Alfred, Cabrini, Eastern, Monash and Peninsula Health and the information provided will be used by the Service Department to determine the cost of the services requested. The information in the Service Request Form will not be considered as part of the research governance/site authorisation review.

PHARMACY
This form
is accepted at Alfred, Cabrini, Eastern, Monash and Peninsula Health and the information provided will be used by the Service Department to determine the cost of the services requested. The information in the Service Request Form will not be considered as part of the research governance/site authorisation review.

HEALTH INFORMATION
This form is accepted at The Alfred, Cabrini, Eastern and Peninsula Health and the information provided will be used by the Service Department to determine the cost of the services requested. The information in the Service Request Form will not be considered as part of the research governance/site authoriSation review.

Data-Driven Healthcare and Informatics

DATA TRAINING AND RESOURCES

At Monash Partners we seek to provide a repository of available training products/resources and to develop new products to fill the gaps as needed. This information shall be updated and altered as appropriate. If you are aware of something that you believe should be added please contact Alison Johnson.

News

Health Informatics Conference – Brisbane 27-29 July 2020.

The Health Informatics Conference (HIC) is Australia’s premier and longest-running digital health and health informatics conference and expo.

Presented by HISA, Australia’s digital health community, it offers three days of clinical, scientific and academic presentations, case studies and success stories as well as free workshops, masterclasses, networking opportunities and a prestigious gala dinner and awards night.

International Population Health Data Linkage Network Conference

Data Linkage: Information to Impact | 27-29 October 2020: Adelaide, South Australia

The conference will bring together a wide range of exciting leading international speakers, researchers, data linkers, data scientists, practitioners, policymakers and consumers to discuss and exchange ideas relating to the full spectrum of data linkage and use of linked data to impact policy and improve health and social outcomes.

Australian Telehealth Conference 2020

MELBOURNE 29-30 APRIL. “Accessible and sustainable healthcare in the digital age”

Virtual care offers an unparalleled opportunity to deliver real change addressing the challenges of healthcare over the next decade. It has the power to transform every health and social care sector and the way services are delivered from aged care, mental health and disability services – even the growing awareness of climate change and the renewed focus on sustainability. Be part of #ATC2020 and be empowered for the next decade of virtual healthcare

Bullet points: AI forging a path for better forensic medicine.

Monash University’s Department of Forensic Medicine and The Victorian Institute of Forensic Medicine (VIFM), performs autopsy services for all deaths reported to the Victorian State Coroner. Here they present a project to utilise AI for analysis of existing autopsy data
RESOURCES

Australian Hospitals & Healthcare Association has recently established a new Australian Centre for Value Based Healthcare.

The Australian Centre for Value-Based Health Care has identified a number of resources that may support your work in value-based health care.

Emerging Researcher Fellowships

Monash Health 2020 Emerging Researcher Fellowships – Applications are Open and close on Tuesday 17 March 2020 for Monash Health Employees only

The primary purpose of the Fellowship is to invest in early research career individuals, with significant potential for a research career and for whom a fellowship would contribute to that end. The Fellowship is to encourage Monash Health employees to conduct a research project and to target emerging researchers.

The Emerging Researcher Fellowship provides a career development opportunity for those who do not have a proven record of research and to provide some salary support for employees in all health related disciplines including Allied Health, Medicine and Nursing.

2019 NHMRC Symposium on Research Translation

The symposium reflected on how we might optimise the use of health and medical research data, to inform health care policy and practice. The social, ethical and legal issues in the context of health data were a focus. This link takes you to the plenary presentations.

HDRUK – Health Data Research UK

The Health Data Research Hub for Acute Care (pioneer) will link, for the first time, acute healthcare data from primary care (GPs, pharmacies and out of hours GP services), secondary care (NHS hospitals) and the ambulance service across the West Midlands, so that we can follow an individual’s acute care journey across community and hospital healthcare providers.

Health Data Research UK (HDRUK) announced that Data hubs set up across the UK from October this year will enable cutting-edge research for health discoveries and aim to give patients across the UK faster access to pioneering treatments.

and also from HDRUK:

Discover-NOW – The Health Data Research Hub for Real World Evidence

This Hub will work with data from the NHS in London and Manchester, with appropriate controls and consent, to support research to find new ways to diagnose and treat disease and make care for patients better and safer.

ARLINGTON, VA (October 15, 2019) – The Personal Connected Health Alliance (PCHAlliance) and Integrating the Healthcare Enterprise (IHE) have joined forces to simplify the collection and sharing of health data generated by personal health monitoring devices and mobile applications (apps) to improve continuity of care.

Digital Health: The new frontier of healthcare.

Uber’s app will now directly integrate into Cerner’s electronic health record so that providers will be able to schedule patients for pick-up and drop-off for their non-emergency medical appointments in America.

Helena Teede presents the Learning Health System.

Monash Researchers to explore automated decision-making technologies in new ARC centre.

Here are some links to websites that have interesting News pages:

https://ardc.edu.au/news/

https://www.digitalhealthcrc.com/news-events/

Training
Monash Partners

Monash University has a range of data related educational offerings from short courses to Masters programs. For example the School of Public Health and Preventative Medicine offers a professional education program as does the Faculty of IT. The Library also has useful resources for managing research data.

Sir Louis Matheson Library Monash University.

Australian

ANDHealth
ANDHealth’s primary objective is to create an integrated and connected ecosystem for the development and commercialisation of evidence-based digital health products, bringing together participants from the medtech and pharmaceutical sectors with a broader stakeholder group drawn from the ICT and commercial sectors.

There are a number of training opportunities available through this group.

Australian Physiotherapy Association Lecture on demand: Using virtual reality to treat phantom limb pain.

 This lecture reviews the recent introduction of augmented (AR) and virtual reality (VR) in the treatment of phantom limb pain in upper and lower limb amputees. It includes a review of the biological aetiology of phantom limb pain and demonstration of this technology.

Australian Research Data Commons (ARDC)
ARDC have a number of webinars that may be of interest. For example: a four part series for Data Linkage occurred through March/April 2019 and is available through their website:

Data Linkage 1: Designing Clinical Trials using Linked Data
Data Linkage 2: Accessing Linked Data
Data Linkage 3: Ethical considerations in using Linked Data
Data Linkage 4: Accessing MBS and PBS data

Certified Health Informatician Australasia (CHIA)
CHIA is a unique credentialing program for health informatics. The CHIA credential demonstrates that candidates meet the Health Informatics core competencies to perform effectively as a health informatics professional in a broad range of practice settings.

Digital Health CRC webinar: An introduction to Ethical Artificial Intelligence and its applications in healthcare

Artificial Intelligence (AI) systems, driven by machine learning, are playing an increasing role in how we make important decisions, both personal and societal. Algorithms are already involved in recommending who we should date, who can be released on bail, how much we should pay for insurance and who requires medical care. As with any broad technology, AI has huge potential benefits to society, but also can cause harm.

In this talk, Dr Finn Lattimore will outline some of the ways in which machine learning systems can fail to satisfy ethical norms and demonstrate how the many design choices that exist when we develop such systems encode value judgements. Finn will discuss these issues in the context of real world examples, with a particular focus on health.

La Trobe University post graduate degree courses in Digital Health:

La Trobe’s digital health courses equip you with the skills and expertise required to work in this expanding and essential field – across environments as diverse as hospitals and private practice, to insurance and the corporate sector.

Sydney University
Sydney University has developed a free Massive Open Online Course (MOOC) with input from our translation research centres.

The MOOC has been co-designed by stakeholders and subject matter experts from health, education, government and non-government organisations to develop quality learning materials, initially, for foundational level digital health capabilities. It includes four capability domains:

    1. Digital Technologies, Systems and Policies
    2. Clinical Practice and Applications
    3. Data Analysis and Knowledge Creation
    4. System and Technology Implementation.

Further details available HERE

International

MANTRA
MANTRA is a free online course for those who manage digital data as part of their research project.

Warwick University 
The Library also offers good resources for management of research data.

Research data management (RDM) means the storage, curation, preservation and provision of continuing access to analogue and digital research data. RDM is a way of codifying these research good practices in a way that can make it easier for you to conduct your research.

 Monash and Warwick University and the Mantra training all have particularly easy to understand information about data privacy and confidentiality as part of their information/ training programs.

Resources

Digital Health Guide

There is a growing need for health providers to guide patients in the safe and appropriate use of mobile health apps

The Digital Health Guide provides high quality information about mobile health apps, including what capabilities they have, what conditions they are for, what evidence exists to support their claims, and reviews and ratings from health providers, patients and more.

The Digital Health Guide is currently a subscription-only resource for health providers.

Access to the Digital Health Guide typically costs $100 + GST for a 12 month subscription.  However, they offer discounts by negotiation for organisations looking for access for larger numbers of users.

Australian Government open data

Here is a central source of Australian Government open data, with more than 80,000 datasets currently available.

The Farr Institute
The Farr Institute provides the infrastructure for cross-sector collaboration, developing a broader research community and harnessing expertise from across government, public sector, academia and industry across the United Kingdom.

#Datasaveslives. Connected Health Cities are using data and technology to improve health across the North of England.

The International Consortium for Health outcomes measurement (ICHOM)
ICHOM brings together patient representatives, leading physicians and registry leaders to prioritise a core set of outcomes for different medical conditions. These are published in open-access Standard Sets.

Office of the National Data Commissioner – Data Sharing Principles
Making data public online is an excellent way to unlock its potential – anyone can use it and recombine it with their own information. This can be a boon to researchers, business and the government, but the flip-slide of these benefits is the risk that anyone can misuse the data by attempting to identify individuals.

Further information about the Five-Safes Framework is available here: ONDC – DSP’s

The Department on the Prime Minister and Cabinet also has Data Sharing Principles.

This Guide has been written to assist agencies holding Australian Government data to safely and effectively share the data they are responsible for by using five Data Sharing Principles.

SNOMED International
SNOMED International determines global standards for health terms, an essential part of improving the health of humankind.

We are committed to maintaining and growing our leadership as the global experts in healthcare terminology, ensuring that SNOMED CT, our world leading product, is accepted as the global common language for health terms.

Articles of Interest

McGregor, D., Rohne, I., Solman, A., Shaw, T., Yeung, W., Jones, A., Herring, A., Sukovic, S., Culver, A., Shrapnel, J., & Linehan, T. (2018). Curriculum resource co-design and development for a digital health workforce and digital health ready graduates. Health Education in Practice: Journal of Research for Professional Learning, 1(2). Retrieved from https://openjournals.library.sydney.edu.au/index.php/HEP/article/view/13054

Also see further articles listed on the Data Hubs tab.

Reports
Australian

Flying Blind Volume 1
The Australian health data series, Australian Consumers and Digital Health, focused on the consumer health journey. Includes information about Data terminology, linking and reporting of health-related data and the impact of siloed funding and reporting frameworks on the consumer experience.

Flying Blind Volume 2
This Volume examines Australia’s health and medical research data environment and traces the difficulties that Australian researchers face at each stage of their journey as they attempt to access research data.

International

The Topol Review
Preparing the healthcare workforce to deliver the digital future, as part of the draft health and care Workforce Strategy for England to 2027 – Facing the Facts, Shaping the Future.