Involving consumers in discovery research – reflections and learnings

Victoria Koutsoubos

Consumer and community involvement (CCI) has been prioritised by policy makers, funding agencies and peak bodies and is increasingly common in clinical research, applied research, and health services/health systems innovation and improvement initiatives. However, CCI remains relatively uncommon in laboratory-based, discovery or basic science research settings. Our speakers, Dr Catherine Carmichael from Hudson Institute and Sarah Lukeman, consumer partner, shared their experience and learnings from working together to support a discovery research program in leukemia.